MALADIES LYSOSOMALES PDF

Revue Neurologique – Vol. – N° S2 – p. A – Neuro-imagerie des maladies lysosomales – EM|consulte. Request PDF on ResearchGate | On Apr 1, , Ibtihel Rebai and others published Neuro-imagerie des maladies lysosomales. Request PDF on ResearchGate | Présentations neurologiques des maladies lysosomales chez l’adulte | Lysosomal diseases represent a large.

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Together we are strong. The information is subject to change without notice. Contact Help Who are we? About News Events Contact. Neuro-imagerie des maladies lysosomales. Alone we are rare. Personal information regarding our website’s visitors, including their identity, is confidential. The owners of this website hereby guarantee to respect the legal confidentiality conditions, applicable in France, and not to disclose this data to third parties.

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Orphanet: VML Vaincre les Maladies Lysosomales

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Description The Vaincre Les Maladies Lysosomales VLML is a voluntary, lysksomales organization in France dedicated to providing information and support to individuals with lysosomal disorders and their families; improving the quality of life of affected individuals; and promoting and supporting research for these disorders e. Established inVaincre Les Maladies Lysosomales provides malaadies to appropriate support groups; promotes public awareness campaigns; and offers informational conferences and weekend retreats for affected individuals, families, and healthcare professionals.

maladie NORD does not promote or endorse participation in any specific organization. Address 2 Ter Avenue Massy, France. You may thus request that your data, should it be inaccurate, incomplete, unclear, outdated, not be used or stored, be corrected, clarified, updated or deleted. Any other electronic reproduction or other printed versions is strictly prohibited.

Vaincre les maladies lysosomales

There is no implied endorsement by NORD. Journal page Archives Contents list. Email Address accueil vml-asso. Access to the text HTML. As per the Law relating to information storage and personal integrity, you have the right to oppose art 26 of that lawaccess art 34 of that law and rectify art 36 of that law your personal data.

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Every effort is made to ensure that the details for each lyossomales are as current as possible. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: Imagerie, Maladies lysosomales, Leucodystrophies.

Vaincre Les Maladies Lysosomales also offers a variety of educational materials to affected individuals, family members, and health care professionals including regular newsletters, brochures, books, and videos. You can move this window by clicking on the headline.